Raising a Child with Down Syndrome | Josh & Katie McGruff
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“Katie and I are both pro-choice, but at the end of the day we still wanted to have our child... regardless of what condition she had.”
SHOW DESCRIPTION
Location: Ohio
Date: Sunday, November 17th 2019
Down syndrome occurs in around 1 in 1000 births worldwide and affects an estimated 250,000 families in the US. The disease is caused when a person is born with an extra partial or full chromosome.
There are still many misconceptions about living with Down syndrome, and some adults with the disorder are able to live and work independently.
There are significant health care requirements for a child with Down syndrome with regular check-ups with doctors, physiotherapy, occupational therapy, speech therapy, and counselling normally required. In the US, where there are is no national health system, this can be extremely expensive.
In this interview, I talk to Josh & Katie McGruff about raising a child with Down Syndrome. We discuss the challenges and rewards, the financial struggle, drug companies and the US healthcare system.
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SHOW NOTES
I am donating all sponsor profits from today's show towards Clara's medical costs. If you would like to make a donation, you can send Bitcoin to the following address:
Bitcoin: 3FsmNQuh4kdZxDqM52HZYGw1pErCBFXSNa
Connect with the McGruff’s:
Mentioned in the show:
Wikipedia: Hydrops Fetalis
Global Down Syndrome Foundation: Common misconceptions
Down Syndrome Association of Central Ohio: Three types of Down syndrome
Wikipedia: Vigabatrin
Down’s Syndrome Association: Hearing Loss
Wikipedia: Martin Shkreli
New York Times: Drug Goes From $13.50 a Tablet to $750, Overnight
The Balance: Obama Care
New York Times: Think You’re Seeing More Drug Ads on TV? You Are
THANK YOU TO MY SPONSOR
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